Thursday, April 30, 2009

here's a shot of Harry today at the CCS therapy unit. He's been doing well with both occupational and physical therapies. He also had adaptive PE at his daycare each week. We meet next Friday at County Ed. for his IEP, and hopefully he will start speech then, at least for a few weeks, until the school system goes on break. He's certainly enjoying all the activity, and is showing slow signs of improvement.

Monday, April 20, 2009

Tuesday, April 14, 2009

Harry has been feeling really well the last few days. He started therapies this week, and finished his speech assessment last week. We are still unsure whether he will qualify for speech through the county or not, but whether he does or not, it will stop in late May regardless. His oxygen sats went up 5 points over the weekend, and you may be able to see in the photo, his lips are red now for the first time ever, he's at 90% now! Today the cardiologist said that the fenestration narrows some time after the surgery, which explains the higher oxygen level. At some point in the future, they may close it off completely, if his pressures in the heart are stable, which should increase the level even more. He had a great Easter over at great Grandma Petersons, ate a ton of candy. And the family gave us a large donation for his Heart to heart fund which was just amazing, if a little embarassing. We are grateful for all the help and support. And I think we finally have time to send out some thank you's!

Wednesday, April 8, 2009

hi all, Harry will finally start Occupation and Physical Therapies next week, we had the final meeting today. And I think this week we'll finish up with CCS as well, and maybe get the speech therapies started soon. Harry had his first day at school on Monday and had a wonderful time. It has made a huge improvement in his mood and behavior to get back to something resembling normal. He still gets very emotional at all the things he now cannot do, but is definitely moving in the right direction.