Hi all
Harry had a great day today. He took a barium swallow test yesterday and was okayed for clear liquids. No more gel in his water and poweraid. During one of our several visits to the gift shop, "toy store", Harry had to have some popcorn. He ate it fine and loved it. It also turned out to be a great way to get him to drink more fluids. Our goal for removal of the NG tube is 40oz, which seems a bit much for a 4 yr old. When the occupational therapist heard about the popcorn, she wanted to see him eat it. She immediately took him off the "mechanical soft" diet he's been on for weeks and tonight he was able to eat pizza for the first time since the surgery. And more popcorn of course. We are truly getting back to the old Harry. He is sitting upright without support, and during physical therapy today he was walking with a walker and our help. His favorite activity is riding the bike, a modified tricycle, which he runs around the rehab area on, and talking about it the rest of the time. The therapists have all been amazed with his progress in the last week, as have we. His speech and motor skills continue to improve as well and he seems more like himself every day. We are all pretty tired now but relieved and happy at his continual progress.

Harry seems to have gotten over his cold, no fever, but his appetite is still diminished. The doctors took him off IV meds, and also agreed to remove the NG tube at least for the day. We are hoping to do the same tomorrow, he's much more comfortable without it. He did very well in all his therapies today, Sarah said he was riding a big wheel around rehab this morning and loving it. His movement and speech have improved as well, he's much less hesitant when speaking. He just seems alot more himself, all in all. He will need to drink more liquids in order to have the feeding tube removed completely. We move out of Ronald McDonald house tomorrow morning, their rules, and could check back in in two days time. I think we'll probably just sleep in his room and save the money. Sarah and I will be trading time down here as Mom K. leaves for N.C. on Thursday. Hopefully with his progress, and no more illnesses, we might not have to do it for too much longer, and maybe can come home some time in March, we will see.

Harry is holding up well in therapy, which is M-Sat, though he does tire pretty easily and needs a nap daily. For some reason, the blood draw seems to happen during this nap, brutal. He's been eating well for about a week and drinking from a straw for days. Finally started drinking water from a sippy cup Friday. Another step closer to ridding ourselves of that feeding tube. He is now holding his head up all day and desperately trying to sit up on his own. I'm sure he'll be moving to a regular wheel chair soon. He had another fever last night, but it abated by morning, the doctors suspected it was a mild bacterial infection, I really hope so, considering the serious IV antibiotics he's on. Now for the great news: Friday night he said "I want Godzilla". We about fell out of our chairs. Saturday morning he was saying all kinds of things, "I want to watch spongebob, I want to sit in my chair, I don't want to lay down anymore, I want my toys, I have to go potty" and so on. It's labored, but he's talking up a storm. It was truly great to hear him talk after weeks of "yeah" and not much else. It felt like a huge turning point in his recovery, thanks again for all your prayers and support!

Harry has been fever free for several days now. We are hoping to get him off the feeding tube soon. He sat up yesterday by himself in therapy, and has been holding up his head all day. This is the first day I'd say he's stable, and his therapies are going well. He is feeling better and hopefully we can focus on his speech and motor skills. While I was taking his picture this morning, he blurted out "cheese" which surprised the heck out of me. More to come.

Harry said "cheese" today

Hi all, it's been a while since our last update. Harry had been spiking fevers for about a week in rehab so they finally put him back on IV antibiotics. That seems to have helped. He still has a feeding tube as you can see, but we are hoping that can come out soon, the formula they give him really bothers his stomach. He is gradually moving his limbs more, his legs and left hand, the right hand is still pretty still. He has started holding his head up briefly by himself, and has added a few more words, 'yeah, no, mommy and daddy'. Sarah's mom is watching him now, and she said at the gift shop he also said, 'blue, yellow' and 'that one'. All are really good signs of improvement and the therapies are working. He still wears a diaper, but will take food and drink by mouth. He's on all kinds of meds, and takes two naps a day. I think the physical therapy really wears him out. The nurses of course all love him, one named Brandi, from 6W says she's his girlfriend. And he still cannot sit up yet, but all in good time. So thanks to everyone for your love, prayers and support, and thanks to our moms for watching the kids. Our schedule is going to get alot more crazy when mom Kreitzer goes back to NC, but we'll figure it out. In the mean time, mom Richardson has helped down south and is with Harry right now, so we can work a little in SB. Very strange to be back after being in the hospital for two weeks. Anyway, if he could say it, I'm sure Harry would say he loves you.