Saturday, November 28, 2009

Monday, October 19, 2009

hi all, Harry had an assessment last week, and the OT and PT both said he's progressing well, and want to continue work with him. They will do another assessment in six months. He had another cardiology appt. this morning and his O2 SATS were 93, which is very good. The doctor said his heart function was good, and if it continues, in January he can switch from coumadin to aspirin, which would be great! He continues to be more active at school, and as a result is making new friends. And we have yet to go back to the hospital!

Monday, July 13, 2009


Here's Harry and Holly at his 5th birthday, aptly entitled, "Harry's Five and Still Alive". We are going to hold Harry back a year before sending him to kindergarten. He still has much work to do in the area of writing and speech before he is ready to go, though he's excited about it already.

Saturday, May 30, 2009


fun in the play yard

Thursday, May 14, 2009


We just had Harry's IEP meeting today with CCS for speech and adaptive P.E. and he was accepted into the program, he will get one week of speech, before they break for Summer, unfortunately, however, he will start in the Fall with the speech therapy twice a week at school, and adaptive P.E. which has already started. He is making great strides in both OT and PT with the county, and enjoying his time 'at the gym'. I can't tell you what a relief it has been to be disaster free for this long, it's just amazing.

Thursday, April 30, 2009


here's a shot of Harry today at the CCS therapy unit. He's been doing well with both occupational and physical therapies. He also had adaptive PE at his daycare each week. We meet next Friday at County Ed. for his IEP, and hopefully he will start speech then, at least for a few weeks, until the school system goes on break. He's certainly enjoying all the activity, and is showing slow signs of improvement.